Find out more
The below resources may be a useful starting point to find further information related to public views and public engagement in research and statistics projects.
These are divided into additional guidance materials, existing research, and current initiatives and research programmes that may be of interest.
- UK Statistics Authority Ethics Self-Assessment Tool guidance.
- Range of resources related to engaging the public with research in the higher education sector.
- Government Statistical Service user engagement strategy for statistics.
- UK Research and Innovation public engagement resources.
- Sections A4 and A5 of Annex A of the HM Treasury Magenta Book provides an overview of some of the research methods that could be applied to synthesise evidence and collect data related to public views and acceptability.
- Administrative Data Research UK blog and associated literature review on public acceptability of sharing administrative data for research.
- Scottish Government commissioned research on public acceptability of linking personal data for research and statistics and public acceptability of data sharing across different sectors for research purposes.
- Economic and Social Research Council and Office for National Statistics public dialogues project, exploring public views regarding the use and linkage of administrative data for research purposes.
- Central Digital and Data Office and Centre for Data Ethics and Innovation work engaging the public about algorithmic transparency in the public sector.
- Department for Business, Energy and Industrial Strategy report on the use of public engagement for technological innovation.
- Department for Business, Energy and Industrial Strategy collection on public attitudes to science.
- Journal article exploring public views related to accessing genomic and health data for research.
- Journal article exploring public views on the use of patient data for research in the UK and Republic of Ireland.
- Journal article on using co-creation in public engagement related to medical research.
- Journal article that considers public views on the use of mobile phone call records in health research.
- Journal article exploring patient views on the use of clinical data for research without consent.
- Journal article exploring public attitudes related to data sharing and consent in biobank research in the US.
- Journal article exploring attitudes towards transactional data donation and linkage in health research.
- Journal article exploring willingness to donate personal data for research purposes.
- Journal article exploring clinical trial participants’ views of data sharing.
- Research exploring public attitudes to the use of health and patient data for research purposes.
- Journal article that considers user views on publishing Twitter data in social research.
- Journal article on public engagement with UK government data science.
- Office for Statistics Regulation review exploring public confidence in the use of statistical models and algorithms to support the delivery of public policy.
- Royal Society commissioned research exploring public views of machine learning.
- Centre for Data Ethics and Innovation report on public trust in public sector data use and associated blog on trustworthy data sharing.
- Disability Wales report on working with peer researchers and co-production in disability research.
- Statistics New Zealand (Stats NZ) work on measuring social licence for data stewardship and public attitudes to data integration.
- Ada Lovelace Institute research report on participatory data stewardship, including a framework for participatory mechanisms regarding data governance and associated case studies.
- BritainThinks and Which? report on consumer attitudes to data collection and use.
- EY Global Consumer Privacy Survey 2020.
- Mobility Podcast considering concept of ‘public acceptance’ in the context of technology development.
- Geospatial Commission public engagement programme on the use of location data.
- Centre for Data Ethics and Innovation PADAI network.
- Ada Lovelace Institute have a range of outputs and work programmes focused on public engagement and public attitudes regarding different aspects of data use.
- Research programme investigating the public acceptability of using commercial transactional data in public health research.
- Research programme exploring willingness to share different types of data in the context of a changing pandemic alert level.
- Understanding patient data research and resources for explaining how patient data is used.
- Sciencewise library of public dialogue projects, searchable by theme.
- Involve’s library of methods-related resources for public participation.
- Participedia network for those interested in public participation more generally.
Feedback on this guidance
This guidance has been published as an open draft for comment and feedback. It aims to provide a practical resource for the research and statistical community to assist in considering public views within research and statistical projects.
We would welcome views and feedback on this checklist from interested parties, including how it can be further improved or how useful it has been for your project.
We look forward to hearing from you.