Where can I find out more?

The following resources may be useful in finding out more about different aspects of inclusivity in data use and how it applies to research and statistical projects.

• UK Statistics Authority Inclusive Data Taskforce: Leaving no one behind – How can we be more inclusive in our data? report and blog.
• Global Partnership for Sustainable Development Inclusive Data Charter.
• Inclusive Data Charter webinar on inclusive data amid and beyond COVID-19 (UN Statistical Commission side event).
• Data Impact 2021 event Who Counts?.
• Open Data Institute roundtable on inclusive data and links to further resources of interest.

Research design

• National Centre for Research Methods paper on doing research inclusively.
• Journal article on inclusive research design.
• National Institute for Health Research guidance on ensuring that COVID-19 research is inclusive.
• Government Statistical Service harmonisation standards for measuring protected characteristics.
• Conference abstract focused on inclusive approaches to demographic data collection.
• London School of Economics and Political Science blog discussing how do we know that our research is ‘inclusive’?.
• Journal article on sampling methods to engage hard-to-reach communities in research priority setting.

Accessibility

• Government Statistical Service user-centred design approach to surveys.
• UK guidance on making your service more inclusive.
• UK Design System service.
• Central Digital and Data Office guidance on Government Design Principles.
• UK guidance on understanding Web Content Accessibility Guidelines.
• UK guidance and tools for digital accessibility.
• The Digital Accessibility Centre.
• Central Digital and Data Office guidance on understanding accessibility requirements for public sector bodies.
• The Hemingway App reading age checker.
• Book on Respondent Centred Surveys.

Administrative data and other data sources

• Office for Statistics Regulation’s Regulatory Standard for the quality assurance of administrative data.
• The Government Data Quality Framework.
• Office for National Statistics equalities data audit.
• Journal article on an inclusive research agenda for big data research.
• UN Women report on the use of administrative data on violence against women.
• United Nations World Data Forum webinar on use of mobile technologies to address data gaps.
• Global Partnership for Sustainable Development Data resource on building inclusivity into data-enabled climate action.

Research with under-represented groups

• Ethical considerations related to dementia research.
• Journal article on involving interpreters in research studies.
• Research project and related resources on co-production in disability research.
• SAGE research methods case study on collaborating with people with intellectual disability as co-researchers.
• Market Research Society best practice guide on research participant vulnerability.
• Royal Statistical Society Data Ethics Special Interest group meeting report on the ethics of collecting data on sex and gender.
• Presentations on research across borders (lessons learnt and experiences of relevance to working with diverse communities).
• United Nations World Data Forum webinar on innovations in measuring hard-to-count populations.
• Civil Service blog Please, don’t call me BAME or BME!.
• The book Invisible Women: Exposing data bias in a world designed by men, by Caroline Criado-Perez.

Collecting data from children and young people

• NSPCC guidance on ethics, safety and avoiding harm in research with children.
• NSPCC guidance on recognising and responding to abuse.
• Ethical Research Involving Children guidance.
• UK Research and Innovation guidance on research with children and young people.
• UK Research and Innovation guidance on research with potentially vulnerable people.
• Journal article on the ethical complexities in child co-research.
• Social Change UK guide to creative research methods.
• Guidance on inclusive practice for research with disabled children.
• Journal article on child-led research.
• Office for Statistics Regulation report on children and young people statistics in the Covid-19 pandemic.

If you require any further support in addressing ethical issues in your planned project or incorporating ethical principles, please contact the UK Statistics Authority Data Ethics team or visit our webpages for further information on the support services that we offer.